Möbius syndrome (also spelled Moebius) is an extremely rare congenital neurological disorder which is characterized by facial paralysis and the inability to move the eyes from side to side. Most people with Möbius syndrome are born with complete facial paralysis and cannot close their eyes or form facial expressions.
Limb and chest wall abnormalities sometimes occur with the syndrome. People with Möbius syndrome have normal intelligence, although their lack of facial expression is sometimes incorrectly taken to be due to dullness or unfriendliness. This is the terrible disease that little Poppy was born with.my went to wake Poppy and couldn’t get the little girl up. Nothing she tried snapped little Poppy out of it.
“We could feel her heartbeat, but she was unresponsive,” Stephen recalled. “We knew there was something seriously wrong. She was breathing but she was sort of gasping for air.”“Her eyes were starting to roll to the back of her head,” said Stephen. “A chest x-ray showed that her lungs were full of fluid and she had another respiratory arrest. That night she started to develop twitches and seizures. She was deteriorating fast.”
The doctors ran tests, and tried everything they could. Doctors ran tests, and a few days later they had bad news. An MRI scan showed Poppy had severe hypoxic brain damage.“They told us we had to wait and see, but it wasn’t looking good. I just wanted them to tell me that she was going to be ok.” Doctors then said she was brain dead.
The family gathered around Poppy, doting over the little girl. Macey leaned over Poppy and the big sister blew kisses on her belly. Some people call it blowing raspberries.
Nothing got through to Poppy before. But suddenly, the playful act changed everything — Poppy laughed!
“It was astonishing,” Stephen said. “Then there were little twitches on her arms and legs. Doctors said it could be spinal reflexes, but I felt like it was so much more.”
Now she is walking! Is this a miracle?